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The Time is NOW!

November 15th, 2007 | Posted by Scott Riccio
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House Signon Letter for Provenge Hearings

The time is now, the need is great. The attached letter is now available and will be circulated to interested members of the House for their support. Kudos to Congressman Michaud and his staffer for working through this, for caring about the needs of their constituents, and for taking action to protect the patients in need. These issues demand public hearings in Congress and Congressman Michaud and his staff are helping us ask for them.

As a wise and passionate man once said, “Ask not what your country can do for you, but rather, what you can do for your country.”

What you can do is politely but passionately communicate with your elected Representatives in Congress that you would like them to support this letter, ask them to sign on to the call for hearings, and explain that this will help protect their constituents from continued dysfunction at the FDA that is, quite literally, killing them each and every day by denying them access to promising and potentially life-saving new therapies. They are being denied the true promise of accelerated approvals that was legislated for them by Congress and passed ten full years ago. Congress needs to right that wrong NOW.

Call your Representatives, ask for meetings if they want more information. If their health staffer wants to discuss, please contact me at patientsrights@arighttolive.com. I am making a final trip to D.C. the week of December 3rd and will be available to hold briefings and explain this urgent need. Otherwise, if they already understand the urgency and gravity, ask them to call or email Congressman Michaud (phone and email for staffer Kim Glas is below) directly to communicate their support.

This is an emergency! We need hearings NOW! Please help.

Also, feel free to tell folks that Members offices can call Congressman Michaud’s staffer, Ms. Kim Glas at (202) 225-6306 or email her at Kim.Glas@mail.house.gov if their boss wants to sign on.

Scott Riccio
Founding Member and Advocate
A Right To Live
www.arighttolive.com
patientsrights@arighttolive.com

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This entry was posted on Thursday, November 15th, 2007 at 1:16 pm and is filed under The Cause. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

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WHATS GOING ON

This Is An Emergency!

We rallied outside the FDA building in Rockville, Maryland on September 18th. Now there are buses riding around Rockville and Washington, D.C., further protesting the shenanigans that took place inside the FDA building, as well as outside.

The FDA has gotten caught up with Wall Street. While it is supposed to be busy with evaluating food and drugs, its employees just can't keep their eyes off the money. So that is how decisions are being made these days.
WE'LL BE BACK

These people traveled from all across the country to protest outside the FDA Building in Rockville, Maryland. The FDA has stopped a safe and effective treatment from getting to men who need it now. The treatment is called Provenge and it treats men who have late stage prostate cancer.

The FDA appointed a panel of experts to help it decide on the safety and efficacy of Provenge. That panel voted 17-0 that Provenge was safe. And it voted 13-4 that Provenge showed substantial evidence it worked. And yet the FDA delayed it. Now it could be a year, a year and a half or it could be three years. It could be forever.

These people will keeping coming back to Rockville and they hope others will join them until the courts, the FDA, Congress or somebody does something about this travesty.