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CareToLive is a not for profit corporation; however, donations are NOT tax exempt.
Posts by patientsrights
LATEST POSTS
- 11/10/2008 - New FDA Commissioner - Change or More of the Same
- 10/27/2008 - CareToLive Sends Writ to Supreme Court of the United States
- 10/09/2008 - What is a Life Worth?
- 09/08/2008 - CareToLive Strikes Back!
- 08/28/2008 - CareToLive Continues Fight for Prostate Cancer Patients Rights!
- 08/15/2008 - THE STONEWALLING CONTINUES
- 08/04/2008 - NCI FOIA Response
- 08/04/2008 - Where it stands…CareToLive vs. FDA (long winded version)
- 07/25/2008 - Ed Silverman from Pharmalot Bags It!
- 07/23/2008 - 7/23/08
MOST POPULAR
- Sleepless in Asentar
- The FDA is uncaring, the world won’t change their thought process and meanwhile Congress remains asleep at the wheel, when it comes to Provenge for the terminally ill.
- Michael Milken and the Prostate Cancer Foundation's Foul Balls
- Are Congress and the FDA missing the big picture?
- Corruption at Its Finest
- Supplemental Memorandum Plaintiff CareToLive
- The Time is NOW!
- 3 "Leaked" Letters & So Much More
- Get On The Bus Gus!
- The FDA Is Out Of Control
WHATS GOING ON
This Is An Emergency!
We rallied outside the FDA building in Rockville, Maryland on September 18th. Now there are buses riding around Rockville and Washington, D.C., further protesting the shenanigans that took place inside the FDA building, as well as outside.
The FDA has gotten caught up with Wall Street. While it is supposed to be busy with evaluating food and drugs, its employees just can't keep their eyes off the money. So that is how decisions are being made these days.
This Is An Emergency!
We rallied outside the FDA building in Rockville, Maryland on September 18th. Now there are buses riding around Rockville and Washington, D.C., further protesting the shenanigans that took place inside the FDA building, as well as outside.
The FDA has gotten caught up with Wall Street. While it is supposed to be busy with evaluating food and drugs, its employees just can't keep their eyes off the money. So that is how decisions are being made these days.
WE'LL BE BACK
These people traveled from all across the country to protest outside the FDA Building in Rockville, Maryland. The FDA has stopped a safe and effective treatment from getting to men who need it now. The treatment is called Provenge and it treats men who have late stage prostate cancer.
The FDA appointed a panel of experts to help it decide on the safety and efficacy of Provenge. That panel voted 17-0 that Provenge was safe. And it voted 13-4 that Provenge showed substantial evidence it worked. And yet the FDA delayed it. Now it could be a year, a year and a half or it could be three years. It could be forever.
These people will keeping coming back to Rockville and they hope others will join them until the courts, the FDA, Congress or somebody does something about this travesty.
These people traveled from all across the country to protest outside the FDA Building in Rockville, Maryland. The FDA has stopped a safe and effective treatment from getting to men who need it now. The treatment is called Provenge and it treats men who have late stage prostate cancer.
The FDA appointed a panel of experts to help it decide on the safety and efficacy of Provenge. That panel voted 17-0 that Provenge was safe. And it voted 13-4 that Provenge showed substantial evidence it worked. And yet the FDA delayed it. Now it could be a year, a year and a half or it could be three years. It could be forever.
These people will keeping coming back to Rockville and they hope others will join them until the courts, the FDA, Congress or somebody does something about this travesty.
The Time is NOW!
November 15th, 2007 | Posted by Scott RiccioHouse Signon Letter for Provenge Hearings
The time is now, the need is great. The attached letter is now available and will be circulated to interested members of the House for their support. Kudos to Congressman Michaud and his staffer for working through this, for caring about the needs of their constituents, and for taking action to protect the patients in need. These issues demand public hearings in Congress and Congressman Michaud and his staff are helping us ask for them.
As a wise and passionate man once said, “Ask not what your country can do for you, but rather, what you can do for your country.”
What you can do is politely but passionately communicate with your elected Representatives in Congress that you would like them to support this letter, ask them to sign on to the call for hearings, and explain that this will help protect their constituents from continued dysfunction at the FDA that is, quite literally, killing them each and every day by denying them access to promising and potentially life-saving new therapies. They are being denied the true promise of accelerated approvals that was legislated for them by Congress and passed ten full years ago. Congress needs to right that wrong NOW.
Continue Reading The Time is NOW! »
Popularity: 86%
Tags: A Right To Live, abigail alliance, advisory committee, cancer, congress, Energy and Commerce, experimental, FDA, grassley, oversight, prostate, provenge, scher, walker
Posted in The Cause | 1 Comment »
Are Congress and the FDA missing the big picture?
November 10th, 2007 | Posted by Scott RiccioAnother day and another story breaks about a member of Congress asking the FDA for answers about how a drug with potentially significant safety issues has made it through the agency’s review process and been approved for full marketing and use. While it is to be applauded when Congress correctly invokes its oversight role in reviewing FDA decisions and processes, one must question if the bigger picture is being missed as Congress focuses on the issue of drugs that have been approved which perhaps should not have been, but fails to make any mention of the drugs or therapies that have NOT been approved that very likely should have been.
Continue Reading Are Congress and the FDA missing the big picture? »
Popularity: 95%
Tags: cancer, congress, FDA, grassley, health, hearings, junovan, kennedy, kucinich, oversight, pallone, reform, waxman
Posted in The Cause | 4 Comments »