With our deepest condolences we mourn the loss from prostate cancer, June 2, 2011 at 85 years of age, of one of Care To Live’s fiercest warriors during our battle for Provenge’s approval.  We never did, nor could we, thank him enough for all his help. Sometimes with death there is a revisiting of the person, and we welcome this opportunity to bring you Charles A. Reinwald the man, and his unique and incredible cancer foundation, with its focus on healing cancer, both medically and holistically.

A link to his website has always been right up there, on the top of our home page. Please add it to your ‘to do’ list. If you are a cancer patient, the Cancer Cure Coalition should be your first line of defense.

http://www.cancercurecoalition.org

Cancer Cure Coalition Mission Statement

http://www.cancercurecoalition.org/mission.html

Charles A Reinwald Biography

http://www.cancercurecoalition.org/board.html

Charles became a member of Care To Live early on. He was a great advocate of strengthening the immune system through diet and lifestyle changes, as well as medicine. Throughout the years Charles offered us advice, and support. He was fighting many wars, on many cancer fronts, but was never too tired to write one more letter or one more article, or to offer words of encouragement in our darkest hours, when we needed them most.

Charles was a rarity today. A true patient advocate, not beholden to any corporate or financial conflicts of interests.  He was not an investor in Dendreon which frustrated the likes of those reporters whose deviant agendas were to erroneously portray Provenge as ineffectual, such as Matthew Herper of Forbes Magazine.

A brilliant man, he strove to understand health and wellness better, utiliizing his vast talents to educate and share what he learned with others. That is what made him truly stand out from the pack.

Care to Live literally stood shoulder to shoulder with Charles at our Rockville, Maryland FDA protest on September 18, 2007. He was one of our keynote speakers.

Charles A. Reinwald lives on in the families who will receive Provenge, those patient advocate and those with cancer whose lives he touched directly, his wife, his children, several of whom attended our Provenge 10 city rally in Cleveland in 2008, his grandchildren, and through his wonderful Cancer Cure Coalition Foundation.

I strongly urge people to send donations to:

The Cancer Cure Coalition
305 Beach Road, Suite 204
Tequesta, FL 33469

Telephone: (561) 747-2127

a 501 (C) (3) tax exempt charitable organization. Your donations are tax deductible pursuant to the Internal Revenue Code.

* * * * *

In February 2008 Mr. Reinwald took the FDA to task in this press release.

http://www.reuters.com/article/2008/02/21/idUS136546+21-Feb-2008+PRN20080221

Cancer Cure Coalition Proposes Major Changes at the FDA

Thu Feb 21, 2008 7:45am EST

PALMS BEACH GARDENS, Fla., Feb. 21 /PRNewswire/ -- Flawed policies and bad

decisions at the FDA have contributed to an escalation of the cost of clinical

trials which now take an average of one billion dollars and require 10 years

for approval. This has delayed and even prevented the availability of many Continue Reading RIP Charles A. Reinwald — Cancer Cure Coalition Founder »

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Our FDA Fieldtrip

We arrived at the FDA visitor parking lot at 7:45 AM ready to protest at 8:00. There were already many visitors parked there and the FDA lot was already full of cars. We walked across the street so we were right in front of the 5600 Fischer, the FDA Parklawn building.

A security guard saw us coming and immediately went inside. We were hoping to speak to one. I held up my sign and started saying variations on this theme: “Extra! Extra! Read all about it! A cancer patient tells his story in today’s Rockville Gazette. He needs the FDA’s help!”

A soft-speaking guard with an accent came up to us and told us we had to stop. We pleaded our case, told him that we had contacted security several days prior to our arrival and had not heard back but that we had a right to protest on the public sidewalk but he wouldn’t have it. He told us we had to leave and couldn’t take pictures either.

He kept asking for our names and addresses and we kept asking him questions.

I didn’t have the e-mail on me so I told him I had to go to my car and get the sheet that showed we contacted security. He went back inside and we went to our car. The next thing we know we had six security guards swarming around us and our car like a bunch of angry bees.

We gave them the email, and answered all their questions and they wrote down our license plate, names, and Kerry’s phone number. We gave them some flyers and a www.CareToLive.com button and we kept throwing Melody’s name around (Arnie’s even came up once in the FDA lobby). We again pleaded our case and our rights and they said they had to get clearance.

It was very windy, cold day there and we stood in the parking lot next to our car, (a “The FDA Is Broken, Continue Reading The Rockville Runaround! »

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For those of us who have followed the Provenge saga and have been fighting this injustice since May 9 2007, most, if not all the information contained here will not be news to us. Nevertheless, since I have been offered a platform to express my views and opinions, I leaped at the chance to do so. My main concern and motivation for this blog stem from what appears to be FDA corruption and the lack of urgency by Congress to rectify the situation.

I have written to my Senators and Representative so many times, I have lost count. If I am lucky enough to receive a response, the communication exchange usually ends the same way. The Senators and Representative forward my concerns to the FDA. The FDA changes the recipient’s name and sends their already prepared form letter to the Senators and Representative, which is then forwarded to me. The FDA’s response is a blatant disregard for authority. Who is the boss of whom? The FDA is seriously out of control. What is even more disturbing is that Congress has allowed the FDA to get away with thumbing their nose at the boss (Congress). If this was any other employer/employee relationship, the employee would have been shown the door a long time ago. My perception is that FDA officials have become so cocky and removed from the mandate set by Congress, they feel they answer to no one. I apologize for the rant. However, this situation is beyond ridiculous and I am beyond frustrated.

Continue Reading Corruption at Its Finest »

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